Aive

Aive põeb tsöliaakiat. Tsöliaakia on krooniline autoimmuunhaigus, mis on põhjustatud toidus leiduvast gluteenist (valk) ja seetõttu on Aivele keelatud kõik toidud, mis sisaldavad nisu, rukist ja otra. Sageli arvatakse, et gluteenivaba dieeti peetakse moepärast. Harvem teatakse, et tegemist on tõsise haigusega. Oluline on ka teada, et tsöliaakia ei ole toidutalumatus ega allergia.

Aive sai tsöliaakia diagnoosi 27-aastaselt, kuid ta arvab, et haigus sai alguse juba lapsepõlvest. Tsöliaakia on aladiagnoositud haigus nii Eestis kui ka mujal maailmas. 27. eluaastaks olid Aive vaevused suured ning kaal langenud alla 40 kilogrammi.

Aive on olnud Eesti Tsöliaakia Seltsi vabatahtlik üle paari aastakümne, seega on tema missiooniks olnud pikka aega tsöliaakia kogukonna edendamine ja toetamine. Aive on ka koolitaja ning õppejõud ning juhendab aktiivselt kursusi.

Aive suffers from celiac disease, a chronic autoimmune disease caused by the common protein, gluten. Due to this, Aive cannot eat any wheat, rye and barley products.

Often, people assume that a gluten-free diet is just a fad, without realizing that it can be related to a serious health condition. It is important to know that celiac disease is not a food intolerance or an allergy.

 Aive was diagnosed with celiac disease at the age of 27, but she believes that her condition may have started much earlier in her life. Celiac disease is underdiagnosed both in Estonia and elsewhere in the world. By the time she was 27, Aive’s symptoms had become severe, and her weight had dropped to less than 40 kilograms.

For several decades, Aive has been a volunteer for the Estonian Celiac Society, so her mission has long been to promote and support the celiac disease community. Aive is also a trainer and lecturer, actively supervising courses.